Sunday, March 29, 2009

I am a slacker!!!

Ok guys sorry I have not been updating the blog but I have been exhausted and trying to catch back up with school work and work from my internships. I have had to turn off my phone and lock myself inside my office. David is recovering well and has been expressing less pain now while healing than he has in the last few months. Of course he is still all smiles and outside of biting we are almost back to normal.

On the white board in his room I posted a sign that said Beware of Biter ha ha (funny until he get ya)

Please keep us in your prayers it will take 25 days to clear us from the posiblity of infection and only six weeks till I graduate!!!!

Wednesday, March 25, 2009

God is good ALL the time!!!!!!

Less than 24 hours after brain surgury and we are home =) David is doing well and outside of a little pain managment we are on our way to a full recovery. I am feeling exhauseted and and have been fighting a migrane for the last 3 days but when I think of what my little man has gone through I can not complain. We will follow up with the doctors in two weeks to make sure his shunts are functioning properly and that the cyst do not return. Thank you all for your love, support, and prayers it really did help us through. I will continue to update the blog on his progress.

We apprecaite you all!!!!

Tuesday, March 24, 2009

God is good

David has been out of surguery for about 2 hours. He is already awake playing and of course he is smiling =) Thank you all!!!!!!!!

Here we go

We are preping for surgury. Speaking with everyone involved the doctor, the doctor’s engineer and surgury tech. I just gave David a bath since I might not be able to bath him for at least a few days after surgery. He had stickers placed on his head by the doctor’s engineer to guide the surgeon and we just got back from MRI again.

Until a few minutes ago I have been calm but, now that the tears have begun to fall I can’t stop them. He is taking a nap so peacefully right now. In one hour I will be holding him while they place a mask over his face, he will go to sleep, they will wheel him away and I will wait for updates on surgery and his progress. I don’t feel like I am ready for this but I really don’t have a choice HERE COMES THE STORM!

Surgery is scheduled for today at noon

After David’s MRI doctors found that there is more difference between his last MRI and the new one than they could see on the CAT scan. There is a large cyst of fluid that has been continuously growing over the past year. It is putting pressure on his left frontal lobe. Because of the location of the cyst the doctors must put a third shunt in David’s head. I am still numb and David is still smiling of course. There is power in prayer Please say a Prayer for us!!!!

Just wanting to know more

I just got orders not to feed David or give him anything by mouth. I don't know why but it is a safe assumption that he will be having some kind of procedure done today???? I will keep you posted.

Monday, March 23, 2009

One day at a time

Well for those of you who are wondering what we are up to me summarize our day. I woke up at 6:30 and then reviewed and compared Head scans with David’s Nero surgeon Dr. Moss. While I was in the nurses station viewing the scans David tried to make a great escape, climbing out of his bed and venturing out to hallway were a nurse found him “hanging out” (I guess he needs a little more adventure in his life lol) After speaking to Dr. Moss I rushed to an appointment with a specialist which I have been waiting over a month for. From there I went back to the hospital ordered David lunch, got dressed, and took David for an MRI. I try to avoid sedating him so for MRI”s I lay on his chest and sing to him while they put us in a very small tube with very loud noises. David being amused by sound acted as if we were on a ride at the amusement park. He giggled threw the whole process. Then I headed to Maricopa County Hospital to facilitate a Child Life Activity that I have been planning. From there it was off to school for class and now I am finally at the hospital with my Day Day =)

Sometimes I wish there are more hours in the day but today I am content with the 24 hours God has given me. I am running on 3 hours of sleep and I pray that I get a few hours of beauty sleep tonight. (Lord know I need it) One of the hardest things for me to deal with when David gets sick is that our whole world comes to a halt, but the rest of the world keeps on going, sometimes leaving us behind.

Threw the years I have learned how to jump right back in but, that can still be challenging. So for now I will focus on all the cute little random things my son does to keep my mind at ease. BTW David is still caring around his hockey puck and when the nurses ask to see what he has he hides it between his legs as if he is caring a jewel. (I am sure to him it is)

Sunday, March 22, 2009

Helpless but Hopeful

Well we have just been admitted to PCH for potential shut failure. Looks like surgery number 28 might have finally caught up to us. Although, the fear of surgery is trying to creep in, I keep focusing on David’s smile which assures me that regardless of what the doctors might say we are going to be alright. Like always David is laughing, playing, and singing with out a worry in the world. His strength is keeping me strong.

I am feeling a bit overwhelmed with graduate classes and two internships so keeping this blog updated is the easiest way for me to keep everybody posted.

Just yesterday David was invited by the Phoenix Coyotes to watch them play Hockey. We enjoyed the game from a presidential suite and after the game David was given the opportunity to meet the players. While waiting to meet the players someone handed David a hockey puck, which David immediately became attached to. Our new friend Sarah introduced David to the team as there good luck charm. (because they won of course) David must have felt likewise because he has not let go of the puck since. He slept with it, has eaten with it, and it is now keeping him entertained while we wait for a bed. Focusing on all of the very special friends in our lives which have provided us very special moments keeps me from being overcome.

So for all of you who are reading this and have taken the time to say a prayer for us THANKS. When people ask me how I do it, I do it because I have the love and support of people like you =)