Saturday, March 31, 2012

Hug your kids today and enjoy them…

This morning I woke up to David playing.  He was just lying next to me with his favorite toy, which of course happens to be the noisiest toy in the house.  I tried to cover my face with my pillow but all I could hear was “head, shoulders, knees, and toes” over and over and over again.    I just wanted it to stop, I just wanted one more hour of sleep.  When I realized that it wasn’t going to happen, I surrendered to my fait and just watched my son repetitively push the foot of his Teddy Bear as it sang the same song, again, and again. In that moment I realized… He is back!

I then got up to put him on the toilet.  When he was done I realized that he had put something (God knows what) in the toilet and as a result my pipes/plumbing were backed up.  I think I have the plumber on speed dial and they have me down as a VIP customer.  My first instinct was to panic, another expense and issue to deal with… Ugh…  then I look over at David and vividly remember the nights I laid awake praying and longing for the day that he could again breath on his own, respond to his desperate mother, and yes play with his annoying toys, and put stuff in the toilet again.  I again realized…   He is back!

I appreciate those things that once drove me so crazy.  When forced to think of life without them I realized that I treasure who David is and what he does even when it wakes me up at 7am on my day off or creates a $150.00 plumbing bill. 

Hug your kids today and enjoy them… Everything about them, because those little moments that drive us parents insane are memories we will cherish one day.  Don’t let those moments slip away, laugh about them, and be thankful that our children are here to drive us crazy!

BTW ~ I am anxiously waiting for his Bears batteries to die ;) 

Read all about David's ride in the Bat Mobile. It's an amazing Hope-Filled Story!

Tuesday, March 27, 2012

Just got back from the school talent show, got to watch our students perform. They all did Amazing!   I am brought  David so that all the Valley View staff, students, & families who wrote to him, prayed for him, and/or followed our blog daily could finally meet our little or shall I say BIG MIRACLE. They were all very excited to meet my him and he loved jamming out and all the attention ;) 

♥ ♥ ♥ David Makes My Heart Smile ♥ ♥ ♥

It might sound crazy but I truly feel blessed that God has selected my child to be a living testament of his works and honored to be chosen to care for such a precious gift!

Today is the day that the Lord has made, I will rejoice and be Glad in it!

I could not sleep last night, my mind raced, as I tossed and turned the entire night.  As a result, I woke up late and then realized that my angel who was potty trained prior to falling ill, had a mess everywhere.  David was once able to help with transfers and bear a little weight on his feet, but that is one of the many skills we are working on relearning.  Lifting David to clean him this morning felt impossible! I quickly found myself frusterated and overwhelmed.    I wanted to be grumpy today, I am tired, and my body aches… 

As I am geting ready to loose it,  I looked over at my son, who gave me a half smile and proclaimed “come on” as he patted the bed with enthusiasm, and in that moment I realized how LUCKY I am.   I quickly decided to change my attitude. Today I woke up to a son to get ready in the morning, a job to wake for, and transportation to get me there.  Today I will have a grateful heart and an appreciative attitude because ultimately the choice is no ones but mine.  Although, I will not always have the power to change my curcumstance or things around me I will always have the power to change the way in which I choose to respond to them so...  “come on world bring it”! 

“Only 10% of life is made up of what happens to you, the other 90% of life is decided by how you react”.  ~ Author Unknown

Monday, March 26, 2012

I one day, one moment, one breath at a time… Ready, set, Go!

Aww I just sent my baby off for his first day back to school. The bus driver informed me that they had been praying and she reassured me they didn’t let anyone else sit in his seat the month he was gone ;) I am trying to get myself amped up and read to back to work today, but I feel like it is my first day and I am starting all over again. 

 I can’t wait to see my students! I value my interactions with each and every one of them, so not having the ability to work with them for over a month has left me with a void. I know all the students are going to want to know about David and what happened. They care and many of them and their families have followed his story, but I just want to get through the day without crying! Wish me luck =) 

Sunday, March 25, 2012

If you ever question how Great God is... Let David Show You =)

This morning David and I woke up, went to church, had lunch, took pictures, and then were blessed with the opportunity to experience a ride in the Bat Mobile! David was awarded keys to the Bat Mobile for his Courage! He was deemed an “Honorary Super Hero”!  As he was being presented his key/ Super Hero Award I realized that today is March 25th. 

One month ago today, David laid unresponsive in a hospital bed.  He was on 100% Life Support, his organs were failing, and doctors did not think he would make it through the night.  Four Weeks later my little Super Hero was granted an experience children rarely have the opportunity to experiences ~ The Bat Cave.  He spent the day enjoying life and sharing his giggles and smile with  friends and loved ones.    

If you ever question how Great God is... Let David Show You =)  

Today is the Big Day...

Many of you have seen the video of David first opening his eyes, but most of you do not know the story behind the video…

 Bridget from Hopekids came to visit David. He was still on full life support, the doctor’s prognosis were not good, and I was one desperate mommy. David had not responded or moved since his seizure and intubation. Bridget leaned over and whispered in David’s ear. She told him that he needed to pull through and get better so that she could arrange for him to visit the Bat Cave and ride the Bat Mobile. Once she said that he started twitching his eyes, as if he was trying to respond to her.

 We decided we would have mommy sing in his ear and see if we could catch him responding (twitching his eyes) on video. We grabbed my phone and the minute we started recording he actulay opened his eyes and looked right into the camera. That moment was breath takeing!!!

 Everyone blessed to be in the room at that moment, can attest to the excitement and joy of being able to watch him open those bueatiful eyes of his. It was almost like he was letting us know he was going to pull through and he wanted to world to know as well (via YouTube of course). Today is the big day. We will be taking our visit to the Bat Cave in just a few short hours.

A Special Thanks to Gotham City Motors for the Bat Mobile experience and to Dawn Hayes ~ Studio D Photography Co for capturing the moment for us, and of course HopeKids and Bridget for your diligent work providing hope to families who need it the most.


Friday, March 23, 2012

He who began a good work will be faithful to complete it!

God is and has done an amazing work and I just continue to trust and know that "he who began a good work will be faithful to complete it". Although home, this week has been very hectic. I was hoping to get some rest and recover emotionally, but as of today the week has not permitted time for rest or recovery.

 I have spent the last week scheduling appointments, taking David to follow ups, fighting with insurance companies, and trying to obtain all the new equipment and medication David now needs. Emotionally the whole situation/event is just sinking in and I am trying to process many different emotions while also trying to manage life. I am not doing that too well at the present moment.

 We met with David’s school Yesterday and have determined that at least for now the Medically Fragile class will be the most appropriate fit for him, until he has fully recovered. He enjoyed his visit to Caesar Chavez, and displayed more energy than I have seen him have since illness began over a month ago. David rolled around in his chair and greeted both students and staff with such enthusiasm. It was a precious site!

At this moment we are taking everything one day, sometimes one breathe at a time. On Monday, David will return to school and I will return to work, and somehow, someway, we will get back to our normal routines and "our normal lives".

 ♥♥♥  On the bright side David is looking better with every passing day!  ♥♥♥ 

Thursday, March 22, 2012

Ok God... Tonight is one of those moments that I need you to come rescue me from myself. I am frustrated and angry and don't want my human emotions to take from what you are doing in my life. 

I just have to remind myself that "nothing goes to waste" and that things don't have to 
make sense and often won't.

Wednesday, March 21, 2012

His Story/Our Journey does not end here…

We are still adjusting to being home and I am still struggling with my emotions. In the midst of “our crisis” being strong for David was my only option. Now that it is over, the reality and severity of the situation is sinking in. I remember those 24 hours like it was yesterday. Time stood still and 24 hours felt like 24 years.

The Questions racing through my heart, soul, and mind...
Was this going to be the battle we would ultimately loose?  Was David going to survive this? Was he ever going to wake up? Would things ever be the same? How would I get up and make it through my days without his Smile or my Dayday by my side? Eventually, I begun to get too tired to ask questions or even think.

 Knowing that neither my strength nor David’s strength could fight the battle we were facing, I had no other choice but to lay it all at God’s feet. David did survive, he woke up, and myself and many others are blessed with the ability to enjoy once again, enjoy David’s Smile, but things will never be the same!

 I have seen and experienced miracles, my faith is stronger than I could have ever imagined, I am now able to fully and completely trust God, and I know when I call on him,  he comes running. Throughout this experience I have cried out to God, on more occasions than I can count.  Somehow, someway, in my moments of utter desperation God always responded to my cries.  He has sent signs, used people, and made the impossible possible.  That changes a person!

This last month has been an emotional roller coaster, one with more downs than ups, but at the end I got off the ride, and was embraced by my Father.   Right were God wanted me, were I have needed to be for a long time, back in his arms.

Remember although,  David is on the road to recovery his story/our journey does not end here… We have a world to change =)

Tuesday, March 20, 2012

Slowly but surely, I am getting my Dayday back =)   We were listening to praise and worship on our way to follow up with David’s Primary Care Physician (PCP), and he began to dance.  It has been a slow process, but everyday I get a little more of my Dayday back!  Thank you Jesus =)

Don't Let Anything Go to Waste!

This was in a recent Women of Faith ~ daily refreshment titled Nothing Goes to Waste~ I could so related, and felt led to share...

 "I’ve also learned my greatest spiritual growth has sprung from my deepest human pain. Nothing in our lives goes to waste. All experiences, even a marital calamity, will ultimately work together for our good. I've also learned to be patient about not knowing what God knows. I have to trust him to take care of what I can’t see and ultimately make sense of what I do see."

Although, my experience had nothing to do with marriage, I did grow and learn so very much about trusting God and letting go of "needing to make sense of things".

Monday, March 19, 2012

I am learning to laugh about things again =)

After David failed his swallow study speech suggested that David only drink from a sippy cup with a straw. They are intended for toddlers who are just learning to drink from a straw, so straw regulates they amount of fluid. I tried to drink from one myself and they are pretty difficult to drink from. David is not enjoying having to work for his drinks. I keep catching him taking off the lids to avoid having to use the regulated straw ;). As a result I have had my bed, floors, carpets, his toys, and our clothes covered in boost. I want to be angry because he continuously spills and has created several huge messes, but I can’t help but laugh that he has figured out that he can just take off the lid and not have to deal with drinking from the darn “difficult straw”! lol

Sunday, March 18, 2012

Lord I know you have already blessed me with so much, and I am so very grateful, but please I am begging, make my Dayday whole and complete again. His current state is scary and heartbreaking!

 David was sitting next to me and he leaned over and began staring at the floor, drooling, and shivering. I lifted him up thinking he was starting to seize, but he was not. I don’t know if it is the medication, his recent medical issues, or a combination of it all, but that is just the way David is and has been since he has woken up. He has had a few moments were he laughs, kisses, and even dances, but they are few and far between and for the most part he just seems lethargic and lost.

David is home but our Journey continues on...

My emotions are running wild! I am so very grateful that David is alive, that God granted me/us a Miracle, and that I am again blessed with his Smiles. I am so very confused about my current state of being and emotions.

You would think that now that David is stable and home I would relax, but the truth is I am falling apart! When he was in critical condition I did not have time to grief, process, or emotionally deal with the traumatic experience happening at the moment, I had to stay strong for my baby, who at that moment was so very weak. Now that, “that moment” is over, all of those emotions are flooding in and I feel as if I am drowning.

 I know that after any medical event with David it takes a while for things to return to normal or “our normal”, but this is a very different experience than I am use to. Brain surgery although difficult, is something David and I are both use to and know how to bounce right back from. Watching my son unable to do anything for himself hurts my heart, but than I feel guilty for being sad when I am lucky he is even alive.

 He is not longer potty training, he is still not speaking, he can not help with transfers, feeding himself, or any of “our normal” routines at the present time. I don’t want to be ungrateful for what I don’t have, because I am so very grateful for what I do have. He just didn’t come back the same, I still love him the same if not more, I value and appreciate every minute with him, but don’t know how to process or deal with the drastic changes. 

His whole body constantly shakes, he drools, and he is completely dependant. Doctors say all of these symptoms are most likely temporary, but can be permanent. I can deal with David in whatever package he comes in, I just don’t know how to process and/or adjust to the changes.

David is home but our Journey continues on, as will our struggles. I just know that this experience put me in a place where I had no other choice but to completely and fully hand my heart over to God. I had to trust him with my heart and my son. My heart still hurts but I know I am in a place where he can fix some very deep rooted traumas and pain, and this can only make me a better person and mommy for David.

 It just hurts, it’s confusing, emotional, and something I have to deal with one moment at a time. I know we are headed in the right direction so for now I am going to just keep looking up ^^^^^!
I wanted to go to church today but it is raining outside and I am nervous to take David out in this weather. Although, I got to sleep in my own bed last night, I didn’t sleep much. I have such anxiety about David getting sick. Every time he moves, turns, coughs, shakes, anything I wake up.

 David is on new seizure medication since his last hour long seizure, it is suppose to have much better effects, but until his body adjust there are some side affects (like shaking and drooling) and they scare me.

 It so different in the Hospital, if anything goes wrong I have a nurse button I can push, but at home… well I am on my own. I do trust God, but my mommy nervous and anxiety is making it hard for me to adjust and enjoy being home!

Saturday, March 17, 2012

Home Sweet Home!

We are home =)  I can't not wait to take a nice hot bath, sleep in my own bed, eat whatever I want from my own fridge, and wake up and pick out whatever I want to wear to church tomorrow from my own closet.  Oh the simple things in life...

and then of course the not so simple things, like God's miraculous wonders.  I have longed for this day for weeks now, at one point I was told by doctors that David probably would not make it and if he did taking David  home would problably take weeks or even months.  

Although, this has been a long and tiresome journey I have become ever so close to you Lord, and I have needed that for quite some time now!  Thanks I can truly appreciate the journey because we have completed the battle victorious and the perspective gained through this journey has made me ever so thankful!

Friday, March 16, 2012

A recent swallow study revealed that David is aspirating while eating and drinking. This means that the fluid and or food he intakes can and is going into the respiratory tract during inhalation. The potential effects of his aspiration is that it can cause Pneumonia, which doctors do not feel his little body could handle or fight right now. We will be remaining residence of PCH for at least one more day.

When we get home David will be receiving speech therapy so that he can learn to eat and drink again. I know that sounds crazy to anyone who knows David because besides smiling, eating and drinking are the two things he enjoys most and does best!

 He will go home on a special "soft diet" and we will be supplementing his meals with liquid formula which we will be thickening with a special thickening gel. The study showed that David did not aspirate while drinking "nectar thick" fluids.

 All and all he is doing amazing and back to his flirty bubbly self. God has been so amazingly faithful and gracious to us throughout this adventure.

I have been facing some anxiety about going home, David returning to school, and the both of us returning to "our realities". I am excited yet nervous at the same time. Our world has been put on hold for the last month, but the rest of the world has continued on, and somehow we have to figure out a way to jump back in as if "our world" never stoped.

As far as my anxiety, I know that they are natural motherly concerns and I also know that my God is greater than my anxieties and any fears I might have.

♥♥ I think David has fallen in love with Bridget from HopeKids ♥♥ It must be that amazing heart of hers. Sorry son she is taken ;) Awww they are enjoy there first dance, he must have given her 100 plus kisses!!!!!


Thursday, March 15, 2012

A special message for David from our precious little Clowie!

This message brought tears to my eyes. This is the daughter of dear friends of ours. Clowie had a message she wanted to share with her friend Dayday!  They shared with me that when she found out that David was taken off the ventilator she jumped up and down yelling "David is breathing again". ;,)

What a remarkable young girl with an amazing spirit.  God job mom and dad! Lots of love little Miss. Clowie, we miss you and you welcome to come over everyday if you would like, once we get home. Xoxoxoxo


Tube Free Dayday =)

David is officially “tube” free! They took out his IV this morning and his feeding tube about 30 minutes ago. I thought this day would never come. It is not official but we might, just might get discharged tomorrow. Yep, going home only 22 days after being told that David would not make it through the night =)

 Life truly is too short to focus on insignificant things that you can’t change and that don’t matter. We should be spending our time appreciating life and the smallest things about life that matter so very much… Like David enjoying his first Twix Bar and Jamming out to Bruno Mars! Life itself is Amazing and Living it with God by my side makes it even Greater!


God is Love!

I just wanted to thank everyone for their love and support over the last few weeks. I also would lake to make a few statements about my last few post. All of you came to my defense. Some of your were angry, hurt, surprised, and appalled by the behaviors of a few individuals I once called “friends". I too was extremely hurt by some of the things that have been said to me via email, post, or messages (by numerous people). Allowing those hurtful words to make me or anyone else angry is giving Satan the power he wants.

 That being said… what I am called to do is pray for these people, and I would ask all of you to do the same. I do not and have not ever wished them ill and I pray that they may find compassion and empathy for others. If their responses/reactions were out of their own wounds I pray they may be healed from that pain.

 This story is about love, faith, God, and a courageous little boy named David (who BTW is Smiling as I type). While focusing on peoples negative comments I lost sight of that. May God bless everyone today especial those who have wounded me with their words.

Wednesday, March 14, 2012

For God sake I have just begun to enjoy his smile again! Please let me do so in peace!

To all of you who have a negative opinion about my blog or facebook updates, its really quite simple…delete me, block me, don’t read my post, or don’t follow me! But please do not ridicule me, judge me, or kick me while I am down.

     I cordially invite you into my world, not via media and/or social networking but I invite you to take a real walk in my shoes, my real everyday life. Once you have taken a few steps in my shoes (which most of you will never be willing to do) then and only than will your opinion on how I handle myself, live my life, and raise my son matter!
      I am human, never have I claimed to be perfect, and I have spent the last three weeks fighting a battle that has physically and emotionally drained me. I do not need to be attacked by people who have never had to endure or experiences my experiences, my life.
     No one can predict how they will react in crisis until they are actually in crisis. I have handled things to the best of my ability and if for some reason that has not met your standards don’t judge me, step up to the plate and see what you can do to help!
      This battle has not only been a three week battle, it has been a 15 year battle. Although, it is David with the medical challenges, I as his mother have had to fight this battle with him. My heart is pure, my goal is to touch life’s, and inspire others that odds are made to be beaten, but don’t for one second forget that I am human, with a heart and feelings!
      If you can’t respect my heart and feelings or understand that I am tired and have better things to worry about than rude, inconsiderate, and insensitive comments or messages than please just leave me alone. I have learned in the last few weeks that life is short, too short to be spending time or energy crying over people who are heartless and do not and will not ever matter in our lives.

 For God sake I have just begun to enjoy his smile again! Please let me do so in peace!

I Share because I believe it would be selfish of me to to keep the blessing of David and his Miracles to myself!

Every video I share, picture I post, story I share, proves we serve a kind & loving God! 18 days ago my son was on 100% life support, his organs were failing, & doctors had done all they could do. I was told to say my goodbyes " and Know David had fought a good fight". I got on my knees and begged my God, Abba Father, to intervene and complete the work the doctors could no longer do! Many of you  joined me in that request. 

3 days ago David whispered mom, he has giggled, given nose kisses, & even danced. To be honest some days I have not wanted to blog, talk, or recap our daily events, but I knew that our followers, our prayer warriors, and our supporters were waiting for updates.

Everyone who has faithful followed us throughout this event, has been given an amazing opportunity to witness & experience our Miracles along side us. How could I not share that? 

Our God is a big & Mighty God, but sometimes, that is hard to see when the challenges around us seem just as big and mighty. David proved that NOTHING is to big or small for our God. Just call on him, I promise he'll be there! (no matter what time it is) lol

When you begin to feel defeated, weary, or can only see how big your challenges are, my advice would be; praise God in the mist of the storm, understand that he has a plan and a purpose for all things & sometimes we just need to get out of his way, & when all else fails let David remind you to Smile your way through it!

The news we have all be patiently waiting for: 

Today he is back.... David has giggled all morning, even through a blood draw! He gets histarical when we move the bed, and the blood pressure cuff hugging his arm tickles him to no end.   When we have to do anything uncomfortable to him (pokes, pricks, and/or placing a tube down his nose) we just put on a little Bruno Mars, and it gets him through.  He even dances his way through his treatments no =)   He has also decided that he will flirt with his respiratory therapists but doesn't really need their help... He has decided he can hold his own mask and do their job, he has it all under control!!!!!

Every time he giggles I am reminded that God loves me, his smile reminds me that God will never leave me nor forsake me, his joy reminds me to appreciate the small things we so often take for granted, and when David dances it reminds me that worshiping and praising God is the only way to survive challenges like the one we have just survived!

Tuesday, March 13, 2012

If David could talk I truly believe he would be honored to know that his story is inspiring others!

I have recently had someone suggest that my blogging, sharing, and posting of photos gave the impression that I was exploiting and/or putting my son on display. The thought that anyone would think those are or ever have been my intentions greatly hurts me. I am sorry if I have been to honest, graphic, or real in my post. If I offended you in any way please accept my sincere apology. I have tried to crop most of our photos, but my attempts have not always been successful. So if the pictures of David in diapers made anyone uncomfortable again I am sorry and those were never my intentions.

Sharing our story is not always easy or fun, because as most of you have seen our life is not always pretty and filled with roses. I share our story (raw and uncut) so people know that serving God, remaining faithful, and raising children is painful and overwhelming at times. I may not always be easy, but “he never said it would be easy he only said it would be worth it”

I would not share our story if I felt that sharing our journey... David's life and even suffering wasn’t changing lives, inspiring people around the world, building faith and even bringing people to Christ. That is what has made sharing/blogging/posting worth the time and effort throughout this long hard journey. For the most part that is the feedback I have received

David’s story can remind us all that God is capable of using all things to his glory! That has been the intention of my continuous updates!

Nose Kisses Make Mommy Happy!

Mommy got Nose Kisses this morning~ I have waited way too long to share these special kisses with my little man! It is funny the things we take for granted ;)

Monday, March 12, 2012

Our Journey...

A Little About Our Journey... Please repost, share with friends, family, who ever will listen.
David's can teach us so much about life even without words! 
His Smile keeps me going, I pray it may do the same for others. 

May God Richly Bless you all & please keep the prayers coming =) 

We will believe the report of the Lord.

Today is the day...

Although, David is making progresses considering the “battle” his little body has fought, the change in his personality and his ability to do simple things he has done in the past has caused some concern.  

He is still not talking, he can’t lift himself up, or even sit up without assistance, the things that once stimulated him like social interaction and music no longer interest him, and there are days he just stares up at the ceiling as if he is lost. 

This week he has begun therapy; speech, occupational and physical.  We are hoping that will help.  The Speech therapist is concerned with David’s swallowing since intubation.  They fear that if he swallows wrong he can aspirate which can cause pneumonia.   They are no longer allowing him to eat anything by mouth until he gets a swallow study done sometime today.   This means we are back to Pediasure through his NG tube.  I am praying that this study will determine what the problem is and how we can fix it.

David’s Neurologist is also very concerned with David’s current state so we will be also having an MRI and EEG done today.  The doctor says that the test will let us know if this “event” (his 105.8 fever, his hour long seizure, and the virus causing a lack of oxygen to his brain) caused any permanent damage to David’s brain and if so to what extent, and on what part of his brain.

He then informed me that even if we do find damage there is not much we can do about it.  The information from the test today will only help us understand David and provide an explanation for his current state, but that there is nothing we can do for damage already done but be aware of it.

It was so much information to take in and after previous conversations with doctors I wasn’t sure I wanted to know what the doctors thought about David or his prognosis.  Tears began to run down my face, the doctor began to explain how lucky David was to be alive!  He said David surviving with all the odds against him in his condition was “remarkable” in my terms “a miracle”.  He began to explain how critical David’s condition had gotten.  Everything during that week, in those moments is still a big blur to me.  Maybe at some point someone did share this information with me but yesterday was the first time I actually heard it.

I knew David’s lungs were failing and that is why he was ventilated (had machine breathing for him) but I was not aware that the rest of his organs were also starting to shut down and fail.  The doctor explained that David was slowly dying and that him still being with us was “remarkable” aka “a miracle”.  Now I am glad I didn’t know all these facts because it would have made it harder to cope with the current situation, but knowing now allows me to realize how amazing and powerful my God is. 

As the doctor left the room he turned back and said “you have been an amazing heroic mother through all of this” I just smiled and thought “only because I am staying strong for an amazing heroic son”. 

I am trying to stay strong, I want to comfort my son, hold him, tell him it’s going to be OK, and that this will all be over soon but we are still waiting on answers.

I am doing all that I can…                                         
Some days that’s singing in his ear, sponge bathing him, keeping his little body rotated, apply massive amounts of Carmex to his dry little mouth; I just want him to know I am there.
Some days I lay in the bed with him for hours even though I am not tired and my ADHD is driving me crazy just so he can feel me near.  I even stare at the ceiling with him just so he knows he’s not alone.  I am not sure what he sees up their,  He might see Jesus but all I have seen is 59 ceiling tiles. ;)

I am hoping for the best and trusting God to be in the midst of it all.  No matter what the test results determine or what the doctors may say…  We will believe the report of the Lord.  

Sunday, March 11, 2012

BRACELETS ARE IN… make sure to message me how many you want, what colors, & your mailing address. 

Remember the bracelets are free.  I am attempting to build Team David and also show appreciation for all the love, prayers, and support throughout this endeavor.  I also hope that sharing David’s story can inspire the world and build faith. 

If you would like to make a donation to help cover postage & expenses it would be appreciated, but if you are not in a position to do so, no worries just join “Team David”!

Donations can be made by mail, through paypal with my email address ~, online at -, or you can go into any Chase Bank and give them his name: David Campuzano & his savings account #3030970762.

   A Special Thanks to Emis for helping me put together
special packages to send our Team David Wrist Bands out!

Did You Ever Know That Your My Hero?

My dearest David, 
You truly are the Wind Beneath my Wings! This journey has been a challenging one, but I thank God everyday that he gave the opportunity to raise an Angel! You were born with so many obstacles against you yet you still managed to rise above and smile your way through it all.  Even with out legs that work, without words, without so many things like health, that so many of us take for granted, you still manage to inspire the World with you mere presence.  It is an honor to call you my son and I couldn't be prouder of what a courageous young man you are!  You are and always will be Mommy's Hero!

I Am Praising Him Through This Storm!

After the emotional week I have had, I decided I needed to go church this morning. I need to be absorbed in the presence of God, emerged in his presence. I need all my broken piece put back together the way Jesus needs them mended! 

I get ready, kiss my son goodbye, & go to start my car & it won't start! Really Satan, really, are you that threatened by me??? Well guess what I called for a ride, I'm going to make to church, & I'm going to tell them all about the Miracles God is working on my Angel! How about those apples? 

You can take my car, my house, my money, & none of that matters to me anymore, because God spared my son's life!   So Satan...Today you will not defeat me, break me, or rob me of my smile because I have made the choice to praise God through this storm!

Saturday, March 10, 2012

Lord Please carry me through...

Today is a New Day…  I will stand as tall as I can stand, for as long as I can stand, and when I can stand no longer… That is when I will throw myself in his arms because it is then that I will need him to carry me through the rest!

Friday, March 9, 2012

I feel like the stronger I stand, the harder Satan attacks me! For the last 2 weeks I have faithfully held my ground, but today I'm ready to throw in the towel!!! I don't have any fight left in me, I'm weak, weary, and the weight on my shoulders is far to heavy for me to bear much longer :(. 

 Lord I know you have sent me plenty of signs that you are their, you have sent me hundreds if not thousands of people to pray & support us, and as grateful as I am, today that doesn't feel like enough to keep me going. How much longer can I, we, David, endure before we break?

There is no inspiring the world tonight! Heck, I can't even inspire myself right now... This "strong mamma" has lost her cape & maybe even her mind!

If any of you could find a moment please say pray for me... I'm feeling very broken & angry... I feel like I'm at war with Satan & my energy to continue on in this battle is dwindling quickly! Thanks friends

To all of our faithful friends/followers:

In the last couple of weeks I have experienced a world wind of emotions. Some of those have been very painful & hard to deal with! The human in me, has wanted to crumble on many occasions, but it is the love & kindness of family, friends, colleagues, & even perfect strangers who have kept me encouraged & lifted up in prayer. It is through that kindness that I have been able to feel God’s warm embrace, even in the midst of the storm! Words alone can not thank you enough, but know that I am so eternally grateful and will when given the opportunity "pay it forward". 

God calls us together as a body of Christ to collectively meet the needs of His people.  We are to be the hands and feet of Christ.  My friends you have allowed me to feel Jesus all over me during a time of distress and despair.  I have been on this journey with David for a long time and I can honestly say, never have I felt more loved, embraced, supported, and encouraged than I have in the last month.  May God richly bless you all!

For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me.'  "Then the righteous will answer him, 'Lord, when did we see you hungry and feed you, or thirsty and give you something to drink? When did we see you a stranger and invite you in, or needing clothes and clothe you? When did we see you sick or in prison and go to visit you?' The King will reply, 'I tell you the truth, whatever you did for one of the least of these brothers of mine, you did for me.”   Matthew 25: 35-40

“To the world you might be one person, but to one person you just might be the world"… To our family you have all been our world =)

David has been on room air all morning.

Translation: David is breathing on his own without oxygen or the help of any machines, for the first time since February 23!   =)

Thursday, March 8, 2012

When I forget that “he will not leave me nor forsake me”, Jesus does not get offended he just proves it!

I have been so busy worrying about David’s health that I have not been able to think about or process anything else. 

Just a couple of days ago I realized that since I just started working in January, I have only accrued one sick day.  I have already been absent for almost 3weeks now.  My school has been AMAZINGLY supportive and understanding with the entire situation but unfortunately next payday I will not be receiving a pay check.  

The reality has begun to sink in that even though David and Mommies world has somewhat come to a halt, the rest of the world continues on, bills are still due.  The thought of how I am going to pay my mortgage and cover my bills has been extremely overwhelming for me.  I have had to just trust God to provide because that’s all I can do right now, but to be honest the more the bills pile up, the more I worry how God plans on  providing. 

I am a tough girl, who hates asking for help. Very few people know about our current financial situation or what kind of bind this hospital stay has put us in.  I have and probably always will be that person who is always trying to save the world and am a very giving person, but I struggle to know how to be on the receiving end of things. 

Today was an emotionally overwhelming day and although, I rejoiced that my son was being moved from ICU, I was also very discouraged and hurt by the doctor’s words, and stressed about figuring out how to manage all the bills with no income.  After the doctor upset me I left the hospital.  I went home to get some air, get some clothes, and look at the finances.   As I set in my office and began to weep, crying out to God. I recieved a phone call.  I almost didn’t answer it but for some reason I did. 

It was David’s teacher.  He was calling to inform me that he works as an assistant coach at Gateway Community College and after hearing our story they wanted to help.  They had decided to sale 100 bracelets for us and are also hosting a car wash for David.  My heart was so touched I again wept.  (Gosh I am such a cry baby these days)  It is almost as if God keeps gently reminding me that “I got this”.  When life feels so hopeless and I begin to feel alone he God reaffirms that he is listening and does hear my cries!  When I am not sure if or how he is going to provide he shows me.  When I am not sure if I can endure another day of emotional torture he sends me a sign that things are and will continue to get better.   

Thank You Jesus, Mr. Berge, Gateway Community College, Valley View Elementary, Caesar Chavez High School, and everyone who has emailed, visited, and supported us throughout this endeavour!!!

I feel like I am loosing my mind and I can’t win for loosing. I’m not sure what personality you are all getting today ;) I am just hurt and need to vent…

While doctors were doing rounds today they informed me that they think David is almost ready to be moved to the floor (out of ICU).  We were celebrating this big move and his progress when I decided to bring up a few of my concerns with the attending doctor.  I explained to him that David had come in with a cough and runny nose and within 2 days he was on 100% life support and I was told he probably wasn’t going to make it.  I expressed my fears/concerns with David’s home treatment needs, and my desire to prevent and/or protect him this type of illness from happening again.

It was then the doctor decided to provide me with what I think he considered a “reality check”.   “These kids” he said meaning kids “like” David.  Well their life spans are not like ours.  Their bodies are not made to endure, all that they have to endure.  To be honest he said David has had 31 brain operations and has needed machines to make his lungs work.  It is only technology that has allowed you to enjoy him this long.  He informed me that most children “like David” fight hard, but generally loose their battle to an infection or virus like that one David just fought and that as his mother I needed to be prepared.

He explained that he knew how hard it was for parents who assume the role of caretaker of sick children to release that role, BTW he knew because “he has been in practice for 25 years” and not because he had ever actually done it himself.  He recommended that I go seek counseling or speak to a pastor so that when “that time comes” meaning time to loose my child (the reason I wake up and breath every morning, my heart and soul) that I am prepared and compassionate and know the difference between trying to prevent his death and prolonging his death.  I then informed him that his great speech was much easier said than done and that seeing David was his job in which he gets paid for, while David is my world and this is my life in which I have made many sacrifice to ensure that my son survives and thrives.

FYI Thanks for the pep talk Doctor Positive, I am now confused, scared, and in pieces.

This battle is God’s and not ours, only God has the final say not “Dr. Positive”, and I refuse to let Satan get the best of me.  I am going to cherish every moment God grants me with my little Angel.  His story, strength, courage, and love is changing the world… even if it is only one person at a time.

So I am going to find my smile through these tears for my Dayday, and know that tomorrow will be a better day!

Wednesday, March 7, 2012

Spaghetti & Meatballs

Just got orders that David can eat solid food! If he does well we will no longer need to do tube feeds ;) His first meal will be his favorite of course; Spaghetti & a Chocolate Cookie for desert.

 He was not as excited about his 
            first meal as I was!

Remember to Smile today, hug your kids, appreciate the little things in life, and say a prayer for someone who might have it worse than you! =)

David is still very weak and has a long way to go to get back to his “normal” self or baseline, but everyday he is getting a little better =)  This morning he whispered “mom”  and it made my heart smile.  We are taking everything one step at time and celebrating every little milestone, no matter how big or small.  It seems like everyday we are able to remove more equipment from our room, which means more tubing from our Dayday =) We were able to sit him up in his wheelchair for a few minutes yesterday but he was not too thrilled about it.

He is still very weak and can not bare his own weight yet, he has no trunk control, and rarely moves the left side of his body, but the doctor’s say that with a little rehab he will be able to move all of his body as he did before.   There is also no evidence that would lead us to believe that his hour long seizure or his 105.8 had and permanent impact on him neurological. David has experienced a lot of trauma in the last 13 days and the fact that he is awake, moving, smiling, and off life support is enough for me.

As David heals I hope that people don’t forget about his story.  David’s story is about a little boys Strength and Courage that has inspired Faith and Hope for many people.  David is an innocent little boy who has had to fight a rigorous battle for his life since birth.  He has fought this battle with such courage, grace, and joy (not to mention a permanent smile on his face).  Even though David is healing from his current illness our battle/challenges do not end here...continued prayers are always appreciated.

Our journey has been long and filled with challenges, it has gotten the best of me at times but I know that God  has been with us every step of the way, and like the poem “Footprints in the Sand” states when he wasn’t by our side it was only because he was carrying us!

As David continues to heal and needs less of our prayers, I hope and pray that we can all remember that there are suffering people everywhere who need God’s divine intervention (David and I are currently in a hospital filled with them).  Remember to Smile today, hug your kids, appreciate the little things in life, and say a prayer for someone who might have it worse than you!  =)

Getting rid of equipment is always a good sign! Bye bye mega pumps ;)

Tuesday, March 6, 2012

David's first "meal" - apple juice on a sponge

Thank you God because without you I am, we are nothing!

Friends joke that I am Bipolar and have multiple personalities right now. (At the present time I can not deny it) 

Yesterday was definitely personality #14 ~ grieving daughter/fearful mother… 

So right be for my father died they put him on a BIPAP. It is the same breathing machine they have had David on. My father would tell me about how uncomfortable it felt, how the machine made him feel like he was suffocating. It during his last illness that my father expressed to me how hard it was for him just to take every breath, he was tired, and he told me the only reason he was fighting to stay alive was to fulfill promises he had made to me. I realized I was being selfish and told him if he needed to go he could go, and within 30 days my father, my best friend left me to be with Jesus.

The night the doctors told me David would probably not make it, he told me that he knew David was a fighter, a soldier, but that he was probably tired and might not have what it takes to get through this battle. Last night watching him so sad on the machine, the tears running down his face, and the desperation in his eyes made me remember my experiences with my father. My heart ached so very much! I did not want my son to become tired like grandpa and go home, and the thought of that made me very emotional.

Then I remembered that this is not our battle at all… That it doesn’t matter how weak, tired, hurt, emotional, or weary David and I may get. This battle is the Lord’s and his power is beyond any sickness or disease.

Today we are much better. I got my first giggle out of David. He thinks it’s funny when I move the bed up and down. Just when I feel too weak or hurt to fight anymore God gives me exactly what I need to push forward. Thank you God because without you I am, we are nothing!

Monday, March 5, 2012

Tonight Update: My emotions are everywhere tonight! I have been feeling very sad and helpless. David has been just lying there with his breathing mask looking miserable, and pathetic. He has been silent with his eyes wide open filled with tears! When I try to kiss or comfort him he turns away from me as if he is upset with me, and it brakes my heart! He can't understand that we are doing what we have to, to make him better. Sometimes I wonder if he wonders why I'm not protecting him. I wish I could make it all better, but Mommy can't right now! I have to trust God for this one! Our days feel like eternity and no matter how much we sleep it seems as if we are both still always exhausted!


I had Team David Bracelets made. To me the bracelets signify several simple reminders; 

If David can smile through it all, so can we, that God is a loving faithful God, and that God is good… ALL the time!

For those of you who do not know David, he is known for his famous quotes! I couldn't decide what to put on the other side of the bracelets when, a friend suggested we put on of his popular phrases. "Why you crying" seemed the most appropriate to start with since, he has had everyone crying over the last 11 days ;).

David can remind us all of a little something from time to time. (Hope, Faith, and to continue to Smile are just a few of the many things David reminds me of daily.  =) We are not selling the bracelets we would like to share them with our family and friends.  We are however, accepting donations from anyone who is able, so that we have funds to purchase the next order. I was only able to order 200 this time.

Donations can be made through Paypal with my email address ~  Please include your address & how many you would like.  If you are not making a donation & just would like some bracelet’s just message me your info.iate to start with since he has had everyone crying over the last 11 days ;). Donations can be made through paypal with my email address ~ Please include your address & how many you would like. If you are not making a donation & just would like some bracellettes just message me your info.

Today’s Emotions: Who knows… I am still not sure which personality will come out today!

They have to do this horrible treatment on David were they suction the secretions out of his lungs.  It is so sad because David, who never cries, cries every time they do it.   His vocal cords are still sore and swollen from the ventilator tube so when he cries it sounds like he is hissing.   You only know he is crying because you can see the tears and desperation in his little eyes.

He has been struggling with his Oxygen saturation levels (better know as SATS).  Normal oxygen saturation levels should be 95% to 100% but in David’s case they would like him to remain above 90%.  Last night he kept falling in the 70’s so David had to be put on a Bi-level Positive Airway Pressure machine (BiPAP ). It is a breathing apparatus that helps get more air into his lungs.   It is a step above oxygen but, below the ventilator.

I am still trusting and believing!  I am just tired =(  Although, I am ecstatic that David is more awake, him being alert has caused some other issues.  It has become a constant battle to keep him relaxed, he is irritated by all of the cords “tying him down”.  I keep having to try and keep him from ripping out his tubes, leads, IV’s, and all the fun stuff he still needs right now.

Quote of the day:  
“Courage is fear that has said its prayers and decided to go forward anyway.” ― Joyce Meyer

Sunday, March 4, 2012

Please Keep Your Prayers Coming!

The doctors say that  David is “on the fence” right now, which means that although he is breathing without the ventilator and only receiving oxygen,  he is still struggling to breath on his own. He could need to be put back on the ventilator if his breathing does not improve.  His respiratory therapists are amazing and working very hard to prevent that from happening.  Please keep praying!  God is still working and listening, and David is still smiling, which of course is what is keeping mommy going. =)

This World is a better Place because of his Smile =)

He’s back =) Not even an hour off of the machines, after a week of enduring such horrible things, and he is already smiling! This is exactly what I mean when I say His Smile Keeps Me Going!

David taking his first Breath

The last ten days have been a nightmare for us! We have waited, prayed, cried, prayed some more… Just wanting my Angel to live, be able to smile, breath, and be himself again. Nine days ago Doctor’s told me that my son would probably not make it through the night and that if he did it would be a long battle he was still not promised to win. My heart sank, it became filled will pain, sadness, fear, and I became ill. I knew I needed to pull myself together for David because if anyone could beat the odds it would be David. I also knew a mommy in pieces was not going help him any. The following day I went to church. My best friend asked why I was leaving the hospital to go to church when God could hear my prayers/cries from anywhere. I explained, “ I am not going to church to be heard by God, I am going to church because I am on Empty right now and I need to praise him and feel his presence to get me through this next week”. I cried my way through most of the services and when church ended I ran to the altar. I ran right past the ushers and through myself on the floor at the altar steps. I did not care who was looking, or how crazy I looked, I did not care who laid their hands on me or who prayed for me, all I cared about was that God knew I was laying it all at his feet and allowing him to take control!


That he has my friends, that he has! Our journey is not over nor is our fight but God has completed a miracle and has allowed thousands of people to witness and be part of it.

This morning at around 10:00am David was extubated, he took his first breath on his own, his first breath without the need of help from a machine in 10 days =) 

To God be ALL the Glory!!!!