David is still very weak and has a long way to go to get back to his “normal” self or baseline, but everyday he is getting a little better =) This morning he whispered “mom” and it made my heart smile. We are taking everything one step at time and celebrating every little milestone, no matter how big or small. It seems like everyday we are able to remove more equipment from our room, which means more tubing from our Dayday =) We were able to sit him up in his wheelchair for a few minutes yesterday but he was not too thrilled about it.
He is still very weak and can not bare his own weight yet, he has no trunk control, and rarely moves the left side of his body, but the doctor’s say that with a little rehab he will be able to move all of his body as he did before. There is also no evidence that would lead us to believe that his hour long seizure or his 105.8 had and permanent impact on him neurological. David has experienced a lot of trauma in the last 13 days and the fact that he is awake, moving, smiling, and off life support is enough for me.
As David heals I hope that people don’t forget about his story. David’s story is about a little boys Strength and Courage that has inspired Faith and Hope for many people. David is an innocent little boy who has had to fight a rigorous battle for his life since birth. He has fought this battle with such courage, grace, and joy (not to mention a permanent smile on his face). Even though David is healing from his current illness our battle/challenges do not end here...continued prayers are always appreciated.
Our journey has been long and filled with challenges, it has gotten the best of me at times but I know that God has been with us every step of the way, and like the poem “Footprints in the Sand” states when he wasn’t by our side it was only because he was carrying us!
As David continues to heal and needs less of our prayers, I hope and pray that we can all remember that there are suffering people everywhere who need God’s divine intervention (David and I are currently in a hospital filled with them). Remember to Smile today, hug your kids, appreciate the little things in life, and say a prayer for someone who might have it worse than you! =)