Tonight Update: My emotions are everywhere tonight! I have been feeling very sad and helpless. David has been just lying there with his breathing mask looking miserable, and pathetic. He has been silent with his eyes wide open filled with tears! When I try to kiss or comfort him he turns away from me as if he is upset with me, and it brakes my heart! He can't understand that we are doing what we have to, to make him better. Sometimes I wonder if he wonders why I'm not protecting him. I wish I could make it all better, but Mommy can't right now! I have to trust God for this one! Our days feel like eternity and no matter how much we sleep it seems as if we are both still always exhausted!

TEAM DAVID

I had Team David Bracelets made. To me the bracelets signify several simple reminders; 

If David can smile through it all, so can we, that God is a loving faithful God, and that God is good… ALL the time!

For those of you who do not know David, he is known for his famous quotes! I couldn't decide what to put on the other side of the bracelets when, a friend suggested we put on of his popular phrases. "Why you crying" seemed the most appropriate to start with since, he has had everyone crying over the last 11 days ;).

David can remind us all of a little something from time to time. (Hope, Faith, and to continue to Smile are just a few of the many things David reminds me of daily.  =) We are not selling the bracelets we would like to share them with our family and friends.  We are however, accepting donations from anyone who is able, so that we have funds to purchase the next order. I was only able to order 200 this time.

Donations can be made through Paypal with my email address ~ dadasmom5@yahoo.com.  Please include your address & how many you would like.  If you are not making a donation & just would like some bracelet’s just message me your info.iate to start with since he has had everyone crying over the last 11 days ;). Donations can be made through paypal with my email address ~ dadasmom5@yahoo.com. Please include your address & how many you would like. If you are not making a donation & just would like some bracellettes just message me your info.

Today’s Emotions: Who knows… I am still not sure which personality will come out today!

They have to do this horrible treatment on David were they suction the secretions out of his lungs.  It is so sad because David, who never cries, cries every time they do it.   His vocal cords are still sore and swollen from the ventilator tube so when he cries it sounds like he is hissing.   You only know he is crying because you can see the tears and desperation in his little eyes.

He has been struggling with his Oxygen saturation levels (better know as SATS).  Normal oxygen saturation levels should be 95% to 100% but in David’s case they would like him to remain above 90%.  Last night he kept falling in the 70’s so David had to be put on a Bi-level Positive Airway Pressure machine (BiPAP ). It is a breathing apparatus that helps get more air into his lungs.   It is a step above oxygen but, below the ventilator.

I am still trusting and believing!  I am just tired =(  Although, I am ecstatic that David is more awake, him being alert has caused some other issues.  It has become a constant battle to keep him relaxed, he is irritated by all of the cords “tying him down”.  I keep having to try and keep him from ripping out his tubes, leads, IV’s, and all the fun stuff he still needs right now.

Quote of the day:  
“Courage is fear that has said its prayers and decided to go forward anyway.” ― Joyce Meyer

Please Keep Your Prayers Coming!

The doctors say that  David is “on the fence” right now, which means that although he is breathing without the ventilator and only receiving oxygen,  he is still struggling to breath on his own. He could need to be put back on the ventilator if his breathing does not improve.  His respiratory therapists are amazing and working very hard to prevent that from happening.  Please keep praying!  God is still working and listening, and David is still smiling, which of course is what is keeping mommy going. =)

This World is a better Place because of his Smile =)

He’s back =) Not even an hour off of the machines, after a week of enduring such horrible things, and he is already smiling! This is exactly what I mean when I say His Smile Keeps Me Going!

David taking his first Breath

The last ten days have been a nightmare for us! We have waited, prayed, cried, prayed some more… Just wanting my Angel to live, be able to smile, breath, and be himself again. Nine days ago Doctor’s told me that my son would probably not make it through the night and that if he did it would be a long battle he was still not promised to win. My heart sank, it became filled will pain, sadness, fear, and I became ill. I knew I needed to pull myself together for David because if anyone could beat the odds it would be David. I also knew a mommy in pieces was not going help him any. The following day I went to church. My best friend asked why I was leaving the hospital to go to church when God could hear my prayers/cries from anywhere. I explained, “ I am not going to church to be heard by God, I am going to church because I am on Empty right now and I need to praise him and feel his presence to get me through this next week”. I cried my way through most of the services and when church ended I ran to the altar. I ran right past the ushers and through myself on the floor at the altar steps. I did not care who was looking, or how crazy I looked, I did not care who laid their hands on me or who prayed for me, all I cared about was that God knew I was laying it all at his feet and allowing him to take control!

                    

That he has my friends, that he has! Our journey is not over nor is our fight but God has completed a miracle and has allowed thousands of people to witness and be part of it.

This morning at around 10:00am David was extubated, he took his first breath on his own, his first breath without the need of help from a machine in 10 days =) 

To God be ALL the Glory!!!!

Thank you JESUS ~ they just extubated David! In English: David is breathing on his own :).

Come on Pappa your Dayday needs you right now!

We need you right now Daddy =( You and David have
 always been the only ones whose smiles could make
 me smile through anything!

24/7 HOPE
Heaven Opening Peoples Eyes

Today is going to be a good day...a day filled with rest, praise, healing, & hopefully our Dayday's smiles!

I got a half smile this morning even with the vent in!  He also opened his eyes and left them open for the longest they have been open yet =)  

 I truly believe that one day God will give us all a perfect understanding of  when, where, why, and how things happen.  Until then, we just need to cling to him for strength to endure the  journey.   It has been comforting to know that when I'm too weak to even do that, I have people like you all willing to do it for me =)  Thanks again everyone! Right now you are all my little Angels, warriors fighting a battle he is to weak to fight alone! May God bless you all in so many ways!!!

Lord I trust you with my whole heart and I will continue to praise you but... Life really hurts right now!

David's SATs & blood pressure are dropping. They are increasing the pressure on the ventilator but his rates are still dropping. Pray, Pray, Pray! We were hoping to have him breathing on his own tomorrow! ;(


 I have been playing praise music in David's room all day. It might seem crazy but the lower his rates got and the louder his alarms went off, the louder I sang and praised God!!!!


We will not be defeated! David is now receiving more oxygen(80%) and needing more pressure from the ventilator, the X-ray's show some more fluid on his left side of David's lungs but, everything is finally under control and David is now resting again!




03/03/12 ~ 3:00am
Just got done with David's Intermittent Positive Pressure Ventilation (IPPV) treatment. It's awful I have to lay on top of him & try & keep him calm while the respirory therapist pulls secretions from his lungs. No fun, but it will make him better so I'll be up in 4 more hours to do it again.

Mr. Berge giving David a Pep-Talk

His Contagious Giggles ~ David Laughing his way threw an IV

This was David 2 weeks ago, when he was admitted into the hospital for a stomach virus. The nurses were giving him an IV and he laughed his way through it like the champ that he is! It is actually during his hospital stay for his stomach virus that we think he caught the respiratory virus he is fighting now.

God is moving and that is all that matters!!!!

I am starting to realize that this whole situation is more about God and him moving in peoples lives than it is about David or I.    People who don’t pray are praying, people who don’t believe in Miracles believe for David, the love and support brought on by this horrible situation has been amazing and uplifting.


I have had numerous people tell me how strong and inspiring I or we are but, I don’t feel too inspiring or strong right now.  I am just trusting God and going along for the ride.  Matter of fact I cried this morning because their was not enough maple glaze on my donut.  How strong or inspiring is that????? Lol

Too bad David does not like popsicles or I would bribe him with one to wake up ;)

I got this email the other day and it touched me so I wanted to share...


Hi, you don't know me but I feel I know you and your amazing son through your blog. I have a daughter with a cyst in her brain. It is not the extent of what your strength is challenged but it is tough and scary seeing your child go through changes unexplained and the Dr's not always talking. Your courage and support as a mother is truly amazing and shows love is very strong and healing. I am truly sorry what you and your family are facing. However your Dayday is an inspiration of strength,love, and a gift of being unconditional. Our family is praying for you. We wish you a healing heart to be strong for your son. May your love heal him and bring his truly contagious smile once again to his handsome face. Can we send your son a card? My daughter would like to send him a picture she drew. She hopes he wakes up because she thinks he should get a popsicles for being good getting blood drawn. ( she is only 7) many trips to children's in Oakland. 

Power or love to Dayday!


Oh and Kimberley please tell that little princess of yours that I am sure a picture from her will make David and his mommy smile!

Results Are In...

The Infectious Disease Doctor just came in and told us that the results of David's cultures determined that David has  Human Metta Pheueo Virus (HMPV).  It is a virus very similar to RSV.  For most kiddos it would cause a runny nose, cough, and congestion but for children like David it can be deadly.

Messages from David's School

Thank you all for helping me find my SMILE again!

Today has just been one of those days!!!!  My emotions have been getting the best of me and I have had not strength to SMILE my way through this one today.  As I sat in the corner of the Hospital room, crying and feeling sorry for myself I had a few visitors stop by.  A Staff member from my school came and brought us over a dozen letters from all of my students wishing for David to get better.   Then I had a couple of staff members from David’s school bring him a card and his favorite toy.  Before I had time to even realize it I had found my SMILE again!   

I can't seem to find my smile today... Maybe it is because I haven't been able to see his for a week now!

One week ago today I brought my son to the ER for a runny nose and a cough and today I sit by his bedside waiting for him to blink, move, moan, breath….

I can not begin to describe how more desperate and helpless I feel with every passing day. 

When the Doctor first told me that David would probably not make it through the night I began to weep.  In an effort to console me the Doctor said that even if David did make it through the night we could still loose him from his illness weeks down the road. Even then he said “if he does survive it is going to be a long journey and the hospital stay could extend to weeks or even months”.  I then grabbed both his shoulders and said keep him in the hospital for months, a year if you have to, I don’t care just KEEP HIM ALIVE!

David has been slowly getting better but he is still considered in “Critical Condition”.  I am praying that God give him new lungs, and soon.  He is no longer in need of High Frequency Oscillatory Ventilation but he does still remain on a ventilator.  He has opened his eyes a couple of times now almost as if to “say mommy I am with God right now and I am going to be OK” but the selfish mother in me wants to be with me, restored, and back to his normal bubbly self.  I know God is working a miracle and while David is healing he is using David and his journey to prove too many people how REAL and CAPABLE God really is but, my heart still breaks as David’s mother.  People say to take things one day at a time and at this point we are taking things one breath at a time (literally).  Please keep praying!!!!  We still need a miracle and strength to keep fighting this battle!

Well all else fails...PRAISE GOD!

Well all else fails...PRAISE GOD!

Today's emotions: Broken and Desperate...

Desperate for him to wake up, smile, breath on his own! I just want my Daday back and this pain in my heart to go away! Please God I know your listening and if things aren't going to change for the time being,  please bring us comfort and peace :(