Spaghetti & Meatballs

Just got orders that David can eat solid food! If he does well we will no longer need to do tube feeds ;) His first meal will be his favorite of course; Spaghetti & a Chocolate Cookie for desert.

 He was not as excited about his 

            first meal as I was!

Remember to Smile today, hug your kids, appreciate the little things in life, and say a prayer for someone who might have it worse than you! =)

David is still very weak and has a long way to go to get back to his “normal” self or baseline, but everyday he is getting a little better =)  This morning he whispered “mom”  and it made my heart smile.  We are taking everything one step at time and celebrating every little milestone, no matter how big or small.  It seems like everyday we are able to remove more equipment from our room, which means more tubing from our Dayday =) We were able to sit him up in his wheelchair for a few minutes yesterday but he was not too thrilled about it.


He is still very weak and can not bare his own weight yet, he has no trunk control, and rarely moves the left side of his body, but the doctor’s say that with a little rehab he will be able to move all of his body as he did before.   There is also no evidence that would lead us to believe that his hour long seizure or his 105.8 had and permanent impact on him neurological. David has experienced a lot of trauma in the last 13 days and the fact that he is awake, moving, smiling, and off life support is enough for me.


As David heals I hope that people don’t forget about his story.  David’s story is about a little boys Strength and Courage that has inspired Faith and Hope for many people.  David is an innocent little boy who has had to fight a rigorous battle for his life since birth.  He has fought this battle with such courage, grace, and joy (not to mention a permanent smile on his face).  Even though David is healing from his current illness our battle/challenges do not end here...continued prayers are always appreciated.


Our journey has been long and filled with challenges, it has gotten the best of me at times but I know that God  has been with us every step of the way, and like the poem “Footprints in the Sand” states when he wasn’t by our side it was only because he was carrying us!


As David continues to heal and needs less of our prayers, I hope and pray that we can all remember that there are suffering people everywhere who need God’s divine intervention (David and I are currently in a hospital filled with them).  Remember to Smile today, hug your kids, appreciate the little things in life, and say a prayer for someone who might have it worse than you!  =)

Getting rid of equipment is always a good sign! Bye bye mega pumps ;)

David's first "meal" - apple juice on a sponge

Thank you God because without you I am, we are nothing!

Friends joke that I am Bipolar and have multiple personalities right now. (At the present time I can not deny it) 

Yesterday was definitely personality #14 ~ grieving daughter/fearful mother… 

So right be for my father died they put him on a BIPAP. It is the same breathing machine they have had David on. My father would tell me about how uncomfortable it felt, how the machine made him feel like he was suffocating. It during his last illness that my father expressed to me how hard it was for him just to take every breath, he was tired, and he told me the only reason he was fighting to stay alive was to fulfill promises he had made to me. I realized I was being selfish and told him if he needed to go he could go, and within 30 days my father, my best friend left me to be with Jesus.

The night the doctors told me David would probably not make it, he told me that he knew David was a fighter, a soldier, but that he was probably tired and might not have what it takes to get through this battle. Last night watching him so sad on the machine, the tears running down his face, and the desperation in his eyes made me remember my experiences with my father. My heart ached so very much! I did not want my son to become tired like grandpa and go home, and the thought of that made me very emotional.

Then I remembered that this is not our battle at all… That it doesn’t matter how weak, tired, hurt, emotional, or weary David and I may get. This battle is the Lord’s and his power is beyond any sickness or disease.

Today we are much better. I got my first giggle out of David. He thinks it’s funny when I move the bed up and down. Just when I feel too weak or hurt to fight anymore God gives me exactly what I need to push forward. Thank you God because without you I am, we are nothing!

Tonight Update: My emotions are everywhere tonight! I have been feeling very sad and helpless. David has been just lying there with his breathing mask looking miserable, and pathetic. He has been silent with his eyes wide open filled with tears! When I try to kiss or comfort him he turns away from me as if he is upset with me, and it brakes my heart! He can't understand that we are doing what we have to, to make him better. Sometimes I wonder if he wonders why I'm not protecting him. I wish I could make it all better, but Mommy can't right now! I have to trust God for this one! Our days feel like eternity and no matter how much we sleep it seems as if we are both still always exhausted!

TEAM DAVID

I had Team David Bracelets made. To me the bracelets signify several simple reminders; 

If David can smile through it all, so can we, that God is a loving faithful God, and that God is good… ALL the time!

For those of you who do not know David, he is known for his famous quotes! I couldn't decide what to put on the other side of the bracelets when, a friend suggested we put on of his popular phrases. "Why you crying" seemed the most appropriate to start with since, he has had everyone crying over the last 11 days ;).

David can remind us all of a little something from time to time. (Hope, Faith, and to continue to Smile are just a few of the many things David reminds me of daily.  =) We are not selling the bracelets we would like to share them with our family and friends.  We are however, accepting donations from anyone who is able, so that we have funds to purchase the next order. I was only able to order 200 this time.

Donations can be made through Paypal with my email address ~ dadasmom5@yahoo.com.  Please include your address & how many you would like.  If you are not making a donation & just would like some bracelet’s just message me your info.iate to start with since he has had everyone crying over the last 11 days ;). Donations can be made through paypal with my email address ~ dadasmom5@yahoo.com. Please include your address & how many you would like. If you are not making a donation & just would like some bracellettes just message me your info.

Today’s Emotions: Who knows… I am still not sure which personality will come out today!

They have to do this horrible treatment on David were they suction the secretions out of his lungs.  It is so sad because David, who never cries, cries every time they do it.   His vocal cords are still sore and swollen from the ventilator tube so when he cries it sounds like he is hissing.   You only know he is crying because you can see the tears and desperation in his little eyes.

He has been struggling with his Oxygen saturation levels (better know as SATS).  Normal oxygen saturation levels should be 95% to 100% but in David’s case they would like him to remain above 90%.  Last night he kept falling in the 70’s so David had to be put on a Bi-level Positive Airway Pressure machine (BiPAP ). It is a breathing apparatus that helps get more air into his lungs.   It is a step above oxygen but, below the ventilator.

I am still trusting and believing!  I am just tired =(  Although, I am ecstatic that David is more awake, him being alert has caused some other issues.  It has become a constant battle to keep him relaxed, he is irritated by all of the cords “tying him down”.  I keep having to try and keep him from ripping out his tubes, leads, IV’s, and all the fun stuff he still needs right now.

Quote of the day:  
“Courage is fear that has said its prayers and decided to go forward anyway.” ― Joyce Meyer

Please Keep Your Prayers Coming!

The doctors say that  David is “on the fence” right now, which means that although he is breathing without the ventilator and only receiving oxygen,  he is still struggling to breath on his own. He could need to be put back on the ventilator if his breathing does not improve.  His respiratory therapists are amazing and working very hard to prevent that from happening.  Please keep praying!  God is still working and listening, and David is still smiling, which of course is what is keeping mommy going. =)

This World is a better Place because of his Smile =)

He’s back =) Not even an hour off of the machines, after a week of enduring such horrible things, and he is already smiling! This is exactly what I mean when I say His Smile Keeps Me Going!

David taking his first Breath

The last ten days have been a nightmare for us! We have waited, prayed, cried, prayed some more… Just wanting my Angel to live, be able to smile, breath, and be himself again. Nine days ago Doctor’s told me that my son would probably not make it through the night and that if he did it would be a long battle he was still not promised to win. My heart sank, it became filled will pain, sadness, fear, and I became ill. I knew I needed to pull myself together for David because if anyone could beat the odds it would be David. I also knew a mommy in pieces was not going help him any. The following day I went to church. My best friend asked why I was leaving the hospital to go to church when God could hear my prayers/cries from anywhere. I explained, “ I am not going to church to be heard by God, I am going to church because I am on Empty right now and I need to praise him and feel his presence to get me through this next week”. I cried my way through most of the services and when church ended I ran to the altar. I ran right past the ushers and through myself on the floor at the altar steps. I did not care who was looking, or how crazy I looked, I did not care who laid their hands on me or who prayed for me, all I cared about was that God knew I was laying it all at his feet and allowing him to take control!

                    

That he has my friends, that he has! Our journey is not over nor is our fight but God has completed a miracle and has allowed thousands of people to witness and be part of it.

This morning at around 10:00am David was extubated, he took his first breath on his own, his first breath without the need of help from a machine in 10 days =) 

To God be ALL the Glory!!!!

Thank you JESUS ~ they just extubated David! In English: David is breathing on his own :).

Come on Pappa your Dayday needs you right now!

We need you right now Daddy =( You and David have
 always been the only ones whose smiles could make
 me smile through anything!

24/7 HOPE
Heaven Opening Peoples Eyes

Today is going to be a good day...a day filled with rest, praise, healing, & hopefully our Dayday's smiles!

I got a half smile this morning even with the vent in!  He also opened his eyes and left them open for the longest they have been open yet =)  

 I truly believe that one day God will give us all a perfect understanding of  when, where, why, and how things happen.  Until then, we just need to cling to him for strength to endure the  journey.   It has been comforting to know that when I'm too weak to even do that, I have people like you all willing to do it for me =)  Thanks again everyone! Right now you are all my little Angels, warriors fighting a battle he is to weak to fight alone! May God bless you all in so many ways!!!

Lord I trust you with my whole heart and I will continue to praise you but... Life really hurts right now!

David's SATs & blood pressure are dropping. They are increasing the pressure on the ventilator but his rates are still dropping. Pray, Pray, Pray! We were hoping to have him breathing on his own tomorrow! ;(


 I have been playing praise music in David's room all day. It might seem crazy but the lower his rates got and the louder his alarms went off, the louder I sang and praised God!!!!


We will not be defeated! David is now receiving more oxygen(80%) and needing more pressure from the ventilator, the X-ray's show some more fluid on his left side of David's lungs but, everything is finally under control and David is now resting again!




03/03/12 ~ 3:00am
Just got done with David's Intermittent Positive Pressure Ventilation (IPPV) treatment. It's awful I have to lay on top of him & try & keep him calm while the respirory therapist pulls secretions from his lungs. No fun, but it will make him better so I'll be up in 4 more hours to do it again.

Mr. Berge giving David a Pep-Talk

His Contagious Giggles ~ David Laughing his way threw an IV

This was David 2 weeks ago, when he was admitted into the hospital for a stomach virus. The nurses were giving him an IV and he laughed his way through it like the champ that he is! It is actually during his hospital stay for his stomach virus that we think he caught the respiratory virus he is fighting now.

God is moving and that is all that matters!!!!

I am starting to realize that this whole situation is more about God and him moving in peoples lives than it is about David or I.    People who don’t pray are praying, people who don’t believe in Miracles believe for David, the love and support brought on by this horrible situation has been amazing and uplifting.


I have had numerous people tell me how strong and inspiring I or we are but, I don’t feel too inspiring or strong right now.  I am just trusting God and going along for the ride.  Matter of fact I cried this morning because their was not enough maple glaze on my donut.  How strong or inspiring is that????? Lol

Too bad David does not like popsicles or I would bribe him with one to wake up ;)

I got this email the other day and it touched me so I wanted to share...


Hi, you don't know me but I feel I know you and your amazing son through your blog. I have a daughter with a cyst in her brain. It is not the extent of what your strength is challenged but it is tough and scary seeing your child go through changes unexplained and the Dr's not always talking. Your courage and support as a mother is truly amazing and shows love is very strong and healing. I am truly sorry what you and your family are facing. However your Dayday is an inspiration of strength,love, and a gift of being unconditional. Our family is praying for you. We wish you a healing heart to be strong for your son. May your love heal him and bring his truly contagious smile once again to his handsome face. Can we send your son a card? My daughter would like to send him a picture she drew. She hopes he wakes up because she thinks he should get a popsicles for being good getting blood drawn. ( she is only 7) many trips to children's in Oakland. 

Power or love to Dayday!


Oh and Kimberley please tell that little princess of yours that I am sure a picture from her will make David and his mommy smile!

Results Are In...

The Infectious Disease Doctor just came in and told us that the results of David's cultures determined that David has  Human Metta Pheueo Virus (HMPV).  It is a virus very similar to RSV.  For most kiddos it would cause a runny nose, cough, and congestion but for children like David it can be deadly.

Messages from David's School