I'm in aww of my Son David!!! I see hope in his bright eyes, I find peace in his smile, love in his laughter, and faith in every breath that he takes! David is my World and I find purpose in my life through his.
Our life's might be a bit complicated from time to time, but that's what makes us the dynamic duo that we are! I am so very thankful that God chose us to help prove how real God is and that ALL THINGS ARE POSSIBLE THROUGH CHRIST!
His Smile Truly Does Keep me Going & I know it blesses others as well!
Miracles Happen... and David is Proof!!! David's story is about a Heroic little boy who has managed to inspire the world with his strength, courage, and smile. His journey can remind us all to remain faithful, hopeful, believe, and Smile! I share our journey openly. It is real, raw, and uncut, and although I share our faith, miracles, and blessing, I also honestly share the ugly truth about what parenting a child with special needs sometimes entails.
Sunday, December 30, 2012
Tuesday, December 25, 2012
I have been planning and saving for this trip for months. It was a desperate attempt to get away. I needed a break, to be removed from our environment so that I could slow down, breath, and take time to celebrate and appreciate my son's life. I had the entire trip planned out in my head. I would wake David up with a kiss and a Mickey Mouse doll I had gotten him. Then I would get him dressed in his Disney attired and we would spend the day in Disney World enjoying the rides, characters, lights, music, and most importantly each other! I didn't plan on Disney World being full and everything else around us being closed for the holidays!
Change of plans.... now we are sitting here in a dark hotel room while mom tries to pull herself together and stop crying hysterically!
This special day that I spent months planning for just blew up in my face. I'm trying so extremely hard to not let the situation get the best of me but I'm not doing a good job right now. I GET IT LIFE'S NOT FAIR, but I'm trying to make the best of the hand I've been dealt and my efforts still never seems good enough!
I wish I could find a happy Christmas face, at least for David, but the only emotions I can feel right now are disappointment and defeat!
Change of plans.... now we are sitting here in a dark hotel room while mom tries to pull herself together and stop crying hysterically!
This special day that I spent months planning for just blew up in my face. I'm trying so extremely hard to not let the situation get the best of me but I'm not doing a good job right now. I GET IT LIFE'S NOT FAIR, but I'm trying to make the best of the hand I've been dealt and my efforts still never seems good enough!
I wish I could find a happy Christmas face, at least for David, but the only emotions I can feel right now are disappointment and defeat!
I am feeling very blessed to have the opportunity to wake up on Christmas morning and take my son to Disney World "Where dreams come true". Cheers to making memories and many more years of laughs & smiles!
I would like to wish everyone a very Merry Christmas, but most importantly I would like to wish my best friend, my Lord & Savior a Happy Birthday!
~ Happy Birthday Jesus Christ ~
Sunday, December 23, 2012
Travel itinerary, confirmation numbers, diapers, wipes, passports,
meds, letter of health for the dog, warm weather clothes, cold weather clothes,
dog food, snacks for the plane ride, camera, computer, phone, and chargers for
all of the above! This vacation was
intended to be a much needed relaxing getaway, but I have spent the last two
days preparing for it, overwhelmed and in tears.
Everything just seems like so much work and I don't know if
I'm up for the challenge at this point. I'm am just plain and simply tired! I sure
hope I can pull myself out of this funk because the whole purpose of this
Florida getaway was making beautiful memories with my amazing little man.
I sure hope that landing in Florida will be
enough to turn this frown upside down!
Today is just one of those days that I resent having to
struggle with the wheelchair everyday, today is one of those days that not
having a husband or partner to help seems so unfair! Today I'm struggling with
understanding God's plans for us and wishing life was just a little bit easier.
It's just one of those days I wish I could whine to my father about all the
silly little things I'm stressing over that really don't matter, so that
everything could feel better!
Saturday, December 22, 2012
This picture was taken during our 2006 Holiday drive. It was my father's last Christmas alive.
He dressed up as Santa Clause and we surprised several single parent families with bags full of Christmas Gifts on Christmas Eve. He was the skinniest Santa I have ever seen, but boy did he love being able to hand out gifts and put smiles on those families faces. I SURE DO MISS HIM AND ALL THE TIMES WE USE TO SHARE!!!!
I miss dad everyday, but for some reason today the pain of
his absence has felt unbearable. Maybe because this last week I shared stories
about him and his famous fudge with my students. I explained to them how for
dad his fudge was the way he shared his love! As a class we then made our own
batch of fudge to share with each other and our friends at school. It has made
me really miss him.
After I posted this picture on Facebook, I began cleaning out my shed and
randomly found a journal of his and one of his favorite hats. It could be coincidence, but I am
choosing to believe that it was him letting us know he is still with us in
spirit.
Friday, December 14, 2012
7:42pm Update
David has been extremely shaky & lethargic since we left
the zoo so after another vomiting spell I decide to take to the ER if for
nothing else my peace of mind! The good news is he has no fever, he is still
smiling, and he's quite amused and giggling at all the hospital sounds. It
looks like it might just be the flu. I am probably just being paranoid since
our last experience but I rather be safe than sorry. Please say a prayer us.
1:41am Update
Well at least the zoo wasn't our only quick trip this
evening. After less than five hours in the ER and we are being discharged and
heading home. David is dehydrated and has some sort of bug but other than that
all he needs is a little TLC.
All I can think of is crawling into my bed under warm overs
and catching a few hours of sleep before I have to get up for work and then I
remember.... David vomited all over my bed and all of my bedding before I
decided to bring him in. "Sigh" now to finish laundry and find a set
of sheets.
At least my little mans OK!
5:43am Update
We got home a little after 2:00am and after some Zofran David
was able to keep down some pedialyte. He
is fast asleep and I sure wish I could join him. I am up and on my way to work. I can barely open my eyes and my first stop
is for a 24oz coffee. Thank God for
weekends and sleep!
Thursday, December 13, 2012
I still not too sure how I went from being extremely excited
about the Starlight Foundations annual Christmas event at Zoolights to having a
meltdown while sitting in my car crying hysterically in a matter of 30 minutes!
We wait all year for the Starlight
Foundation's Christmas event which is phenomenal. After a stressful month I was
really looking forward to some much-needed QT with my Dayday! Once we got into the zoo we entered a
lavishly decorated hall with a Wizard of Oz theme. There were decorations, Christmas carolers
the whole nine yards. We had just got
seated to enjoy our meals & no more
than five minutes in I realize David is
acting a little funny. I leaned over to
check on him and right at that moment he projectile vomited all over himself,
me, my purse, and the dinner table.
Needless to say we left the event, both covered in vomit doing
the walk of shame. As we get around the
corner David says "mom why you crying?" and all I could say is
"really David". I'll probably
laugh about this tomorrow but right now I'm completely stressed out and
overwhelmed! It's been a long day, long week, long month and all I wanted to do
is finally enjoy a Holiday event with the love of my life.
To be honest, I think what has me so upset is the thought that whatever David might have might require a trip to the ER or Hospital. I know it is silly, but even the thought of going to the hospital gives me great anxiety. All I can think about is that the last time David went to the hospital he almost did not make it back home. I love my life, it has made us who we are, I would not change things for the world, but sometimes I wish we could be “normal” just for the Holidays.
Wednesday, December 12, 2012
CHRISTmas is only 13 days a way and I am trying to remain positive and focus on what this season is all about, but I have been thrown some curve balls this month. My dental work has taken much longer and cost much more than I had anticipated spending this month. I am having a real hard time recovering from my surgery (dental implant) and I have been in constant pain for the last five days. I am swollen, uncomfortable and I can't eat!!!! That makes for one grumpy me.
In addition to my dental fiasco, my mechanic just informed me that I need almost $500.00 worth of work to my vehicle. When it rains it pours!!! Well I guess I will be unpacking my rain boots and umbrella and preparing to weather this storm because after the rain comes a RAINBOW!
I am excited to move past 2012 and into 2013 where I know God has many more blessings in-store for David and I. With so many positive changes in our lives and having let go of some unnecessary baggage this last year David and I are finally prepared to enter this new year off fresh... 2013 HERE WE COME!!!
In addition to my dental fiasco, my mechanic just informed me that I need almost $500.00 worth of work to my vehicle. When it rains it pours!!! Well I guess I will be unpacking my rain boots and umbrella and preparing to weather this storm because after the rain comes a RAINBOW!
I am excited to move past 2012 and into 2013 where I know God has many more blessings in-store for David and I. With so many positive changes in our lives and having let go of some unnecessary baggage this last year David and I are finally prepared to enter this new year off fresh... 2013 HERE WE COME!!!
Sunday, December 9, 2012
I've been struggling a little lately. Not about anything big
just a whole bunch of little things.
I've been missing my dad, worried about David getting sick, buried at
work, trying to prepare for the holidays, keeping the house work kept up,
managing the finances, Finding time and money to get my dental work completed,
and somehow finding time for family and friends which is what the holidays are
all about! I have been just a little overwhelmed
with life in general.
Last week, I had five minutes of downtime so I stopped at Subway
for lunch. Everything I still needed to
get done started racing through my head.
As I went to enter the restaurant
I noticed a little old man in a wheelchair sitting outside the subway
entrance. As I entered he asked me if I
could do him a favor and open the door so that he could go in and eat. This particular subway didn't have a handicap
button so he was unable to open the door and get in on his own. I open the door for him and gave him an inviting smile. He began to joke with me about how hungry he
was and that while he was sitting out there his stomach was growling at him.
As I was ordering my sub I felt compelled to pay for this precious mans lunch as well, so I purchase a gift card. I instructed the cashier to hand it to the man
to pay for his meal but, only after I left the building.
For that moment all of my problems and everything I had been
worried about seemed so insignificant. This
man was not frustrated or angry as he patiently waited for someone to help him. His attitude reminded me to slow down and appreciate the little things we so often take for granted. Buying his lunch was just a small gesture to thank him for sharing his smile with me.
I know what it's like
to have device intended to provide you more freedom also act as a barrier. David and I have lived with a wheelchair attached to our lives. I also know what it's like to be be stuck outside watching from a window or the side lines, and I know how
out-of-control it feels when no matter how hard you try there's just some
things you can't do by yourself. I truly know because I live that life with my
son. Although, I didn't want this precious man to know that it was me who
blessed him with his lunch, part of me wanted to squeeze him and let him know
how much he had blessed me. I wanted to
let him know how courageous he was and how special his smile is!
I am going to make an conscious effort to focus on those
around me, I will enjoy smiles and share mine! When I get overwhelmed I will remind myself that my too do
list, although important, is not worth my joy!
Wednesday, November 28, 2012
Random acts of kindness really do make a difference!
I have had a tough couple of weeks at work
and my days have been long and intense. When I get home I am so exhausted that caring
for David is the only energy I can muster up.
My household chores including yard work have been far too overwhelming
for me to even think about!
Today some neighbors I have never met before came over. It was a husband and wife and the wife
explained that her husband was a landscaper and wanted to work on my yard. I thought they were trying to sale his
services so I asked for a quote and they replied “we just want to help you”.
Since the home remodel I have taken great pride in our new
home and have gone out and pulled weeds every weekend, but now that I am
juggling the dog and extra hours at work I have been slacking and feeling very
guilty about it. Only God knew how overwhelmed I was feeling and he
sent help. Thank you God and random
neighbors who care. That is one less
thing for me to worry about this week ;)
Tuesday, November 27, 2012
I can't deny the fact that I am the psycho mom who still
sends her 16-year-old to school with cupcakes and prize bags for his birthday! Oh and guess what... He slept with me last night so that I could wake
him up singing Happy Birthday to him ;)
What can I say he is officially a typical 16 year old...
16 years ago today, God blessed me with a beautiful miracle that would forever change my life. For the last 16 years David has blessed this world with his smile and taught grown adults what it means to be courageous. HAPPY BIRTHDAY My Love... Mommy loves you with all her heart!!!
Thank you God for the opportunity to share another year with my Dayday!
Monday, November 26, 2012
Friday, November 23, 2012
Today marks 9 months since David got sick and on Tuesday my
Dayday will be 16 on Tuesday.
As the
days draw closer, I find myself more and more emotional! Partly because my baby boy is not such a baby
anymore and also because after almost loosing him 9 months ago, I know what a
miracle having the opportunity to celebrate his birthday this year is!
I can't imagine my life without David and everyday I thank
God for giving me my own little perfect
angel to help me through this journey.
Sunday, November 18, 2012
Day 18: I am thankful that our God is greater!
As cold and flu season roll around the trauma of David and
my experiences last February haunt me.
I vividly remember those long sleepless nights and the
doctors telling me that there was no way my son could survive.
The virus had taken over, his organs were shutting down, he
had been non-responsive, and he could no longer breath on his own. David was on
100% life-support and quickly deteriorating. There was nothing more the doctors or the machines could do for him.
I also remember dragging myself to church on no sleep and
throwing myself at the altar, heartbroken I begged God for a miracle.
And then... I
remember David opening his eyes and showing the world how Great our God is!!!
Thursday, November 15, 2012
Day 15: I am thankful that my son’s joy shines through him everyday.
The bus driver just told me that he is the happiest kid on the bus. David smiles from 6:10 till 8:00 (then entire hour and 50 minute ride). Then he continues to smile for the duration of the day ;) It truly is his smile that keeps me going!
Wednesday, November 14, 2012
Day 13: I am thankful that this Holiday season I will not have the burden of worrying about how I will provide for my son for Christmas.
This year I have decided to sponsor a single parent family for Christmas. The organization that I am adopting the family through is a local nonprofit that has helped David and I immensely. They made sure we had a Christmas while I was unemployed and attending college.
It feels amazing to be on the other end of the Christmas drive this year. I would have never been able to educate myself and offer David the stability and life he deserve without everyone’s love and support and amazing organizations like Helping Hands.
I would love to be able to adopt even more families, but I cannot do it alone. If you are not already committed to a Christmas drive and would like to be part of something amazing please let me know and I can forward you this family’s wish list.
Even if you are unable to help me in my efforts, remember that CHRISTmas is about sharing Christ’s love so I challenge you all to do it in any way you can!
This year I have decided to sponsor a single parent family for Christmas. The organization that I am adopting the family through is a local nonprofit that has helped David and I immensely. They made sure we had a Christmas while I was unemployed and attending college.
It feels amazing to be on the other end of the Christmas drive this year. I would have never been able to educate myself and offer David the stability and life he deserve without everyone’s love and support and amazing organizations like Helping Hands.
I would love to be able to adopt even more families, but I cannot do it alone. If you are not already committed to a Christmas drive and would like to be part of something amazing please let me know and I can forward you this family’s wish list.
Even if you are unable to help me in my efforts, remember that CHRISTmas is about sharing Christ’s love so I challenge you all to do it in any way you can!
Saturday, November 10, 2012
Monday, October 22, 2012
Never fails that when I begin to
get tired and/or weary I receive a
random message or call (sometimes from random strangers) from people who want to share with us how my
son, his smile, or our story has impacted their lives or that they care. It always comes as a gentle reminder of what
our journey is about. It is about
pushing forward, overcoming, and allowing our journey to testifying how
faithful our God is and how strong we can be when we choose to fully rely on
him for our strength.
Sometimes it’s as simple as
someone taking a few moments to share a few kind words, that helps me step back
and put everything in perspective. So to
each and everyone one of you who have taken the time to encourage us throughout
this journey just KNOW that you have made a difference.
Take the time to encourage others
whether you know them or not. Life can
be challenging and in the mist of those challenges it is easy for our human
nature to become defeated. Sometimes a
simple reminder, whatever that may be, is all someone might need to muster the
courage necessary to continue on! You
never know what a significant impact those few words of encouragement might
have on somebody's journey… so share them!
For myself, I find that I often get caught up in “the challenges
of life” and quickly become exhausted.I know things eventually always
slow down and I always manage to pull through,
but in the meanwhile I sometimes need to be reminded of what our journey
is about... Love, Courage, Hope, Faith, Grace!
"To the world you might be
one person, but to one person you might be the world"
Sunday, October 21, 2012
In Loving Memory of Mylee ~ Thank you Hopekids for all that you do!
Today we participated in the 4th
annual Hope Walk which benefits Hopekids.
A note from Mylee’s mother Sara…
The Legend of the Backward
Princess
Once upon a time, there was a
princess who did everything backward.When she was supposed to be born,
she almost died. But she lived, and everyone was happy.
But when she was supposed to
swallow her food down, she threw it up, instead.
When she was supposed to walk,
her legs wouldn't work right. And when she was supposed to sing, as princesses
do, she struggled to make words.
The King and Queen and the whole
kingdom loved their Backward Princess very much, but sometimes they just didn’t
know what to do for her.
They visited royal doctors. They
tried magic spells and potions and sometimes, the Backward Princess would
surprise them.
With her sunshine smiles, her
wiggles & giggles, her dances with her mommy, and the times she could say,
“I love you, daddy” she would fill the kingdom with hope.
A new princess joined the family,
and she zoomed forward and loved her princess sister.
Together, the royal family filled
the kingdom with their brave journeys, their love & smiles, and really
awesome facebook pix.
The Queen herself went on a quest
to cure the Backward Princess. She
braved the dark forest of doubt and fear, she battled the deadly swamp monsters
of health care, she learned from the sages, and through it all the King
protected them when they needed it, and sent the Queen a margarita when she
needed that.
But nothing they tried could
change the destiny of the Backward Princess and before you knew it, it was her
time to pass on. But she did that
backwards, too.
She didn’t die from a magic spell
or a dragon battle or a poisoned charm in fact, she hardly died at all.
Her backward story–and don’t
forget those facebook posts–touched life after life after life . . . she just
kept living in the hearts of the King and the Queen and her princess sister,
and then her story grew beyond that, and she was celebrated all throughout the
kingdom . . .
The Backward Princess taught many
people how to live and love and embrace their lives and grow forward and her spirit will soar free,
forever.
In Memory of Mylee, please donate
to this wonderful organization. We
continue to give praise, to fight hard, and to have 24:07:HOPE... Give to
Hopekids Arizona!! ♥ http://www.hopekids.org/ .
Subscribe to:
Comments (Atom)





